Cystic fibrosis activist Claire Wineland dies aged 21 after double lung transplant

Claire Wineland was diagnosed with cystic fibrosis at birth

Claire Wineland was diagnosed with cystic fibrosis at birth

YouTube star and activist Claire Wineland died on September 2 after a long battle with Cystic fibrosis.

"The quality of our life is not determined by whether we are healthy or sick but by what we have to offer to the world around us", her bio on the Claire's Place Foundation website read.

The YouTube star was diagnosed with cystic fibrosis at birth and she underwent a nine-hour lung transplant surgery last week, but she suffered a stroke after it and her family had to make the decision to take her off life support.

Claire's Place Foundation, Founder, Claire Wineland, Dream Foundation CEO, Kisa Heyer and Jim Mills, husband of Dream Foundation Dreamer, Leeanne Mills attend the Dream Foundation's 2017 Dreamland Gala at The Ritz-Carlton Bacara in Goleta, Calif., on November 18, 2017. "I didn't realize how much I didn't expect to live this long", she said. "Rest In Peace Sweet Warrior Claire, we will continue where you left off".

Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. Wineland had a big following on various social media platforms, including Instagram and YouTube. She even gave a TEDx talk previous year.

McHolm ended the post by sharing the following memorable words from Wineland: "Death is Inevitable". At 13, she started the Claire's Place Foundation, a non-profit which provides emotional and financial support to families living with Cystic Fibrosis.

"When you're talking to someone who has a disability or has an illness, expect that they live lives like yours", Wineland explained in a January 2015 video titled "Tips for Interacting with a Sick Person". It is a genetic condition, with no known cure.

UK's Labour Party adopts full IHRA definition of anti-Semitism
He argued that the IHRA definition was specifically created to associate anti-Semitism with criticism of Zionism and Israel. She added that, even if the party adopted the full IHRA definition it would not be enough to fix the damage caused.

Wineland gained popularity for her videos, where she candidly discussed the hardest parts of CF, often with humor and a smile.

But earlier this year, she had a change of heart, and finally was put on the transplant list in May. "Also, Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people".

Faced with potentially huge medical bills for aftercare, Wineland turned to help from her supporters in a tearful, heartfelt video on July 7, asking if people could give to an online crowdfunding site.

According to the Cystic Fibrosis Foundation, over 30,000 people in the United States, and over 70,000 worldwide have cystic fibrosis.

Her foundation said she had died peacefully, surrounded by family.

While the illness differs greatly from person to person, the predicted median survival age is close to 40.

Recommended News

We are pleased to provide this opportunity to share information, experiences and observations about what's in the news.
Some of the comments may be reprinted elsewhere in the site or in the newspaper.
Thank you for taking the time to offer your thoughts.