‘Just went haywire’: Teen fighting mystery medical condition after cruise with family

Jordyn Walker

Jordyn Walker

The teen eventually lost her sense of taste and smell.

The family was told it was a "one in a million" episode and that it probably would never happen again. Their GoFundMe page has listed her described symptoms and potential diagnoses in the hopes that a doctor may come across the case and offer new solutions or theories.

"There's no answers. There's nothing they could do", Kendyll said. Two weeks before Christmas, 16 months after her initial ordeal, Jordyn's medical mystery returned with a vengeance.

It's a hard reality to accept for a young woman just starting out her life, her mom told Fox4.

'She won't get a chance to drive.

Jordyn Walker's face swelled with blood after the July 2017 cruise, forcing doctors to remove bones from under her eyes to try and relieve her discomfort. "Or see her sisters get married like she wants so much", Kendyll said.

Jordyn Walker, 15, said her medical nightmare started with stomach pain and bloody stools shortly after a family cruise in the summer of 2017. Jordyn Walker, 15, was initially told the illness that robbed her of her sense of taste and smell past year had a "one in a million" chance of returning, but this December she landed in the pediatric intensive care unit at University of Kansas Hospital with severe stomach pain and blood in her stool as pressure built behind her eyes and her face swelled and turned purple, Fox4KC.com reported.

'The pressure behind Jordyn's eyes was an average of 85 mm Hg (millimeter of mercury) - the normal eye pressure is around 12-22 mm Hg.

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A GoFundMe page set up to raise funds detailed what happened next.

"It was terrifying to watch it happen all over again and knowing that we couldn't do anything about it", Kendyll Walker said.

But in spite of her pain and uncertainty, the teenager remains positive about the future. A multitude of tests have been run, but doctors have been unable to pinpoint the cause of her mysterious illness.

Before a round of biopsies, her family wrote on their fundraising page Christmas Day: "None of us, including doctors, are optimistic that we will have a solid reason why this has occurred". "She is passionate about photography and is the lead editor of her school's journalism program". "Jordyn has always been an avid reader and spectacular writer".

"Losing her eyesight will cause major lifestyle changes as she begins her journey beyond the hospital". The post included a video that showed the teenager having some lighthearted fun in her hospital room.

Now they're hoping someone will find answers to finally help Jordyn heal.

'There wasn't, like, an hour of my time when I didn't think I was going to die, ' Jordyn told KMBC.

Surgeons believe the extreme swelling and blood flow to her eyes damaged the optic nerves beyond fix, leaving her permanently blind. "Things get taken from you so quickly and you don't know when it's going to happen".

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